High Court Set to Determine Future of Privacy and Confidentiality of HIV Data

The High Court in Nairobi is expected to deliver judgment in Petition 250 of 2015 on Friday 22 July, 2016 at 1400 hrs. The Petition was filed in 2015 by KELIN, Children of God Relief Institute (Nyumbani), James Njenga Kamau and Millicent Kipsang to challenge an unconstitutional directive by the President.

In the unconstitutional directive, the President directed County Commissioners to work with County Directors of Education and Medical Services in the collection of up-to-date data and preparation of a report on all school going children who are HIV positive, information on their guardians, number of expectant mothers who are HIV positive and number of breastfeeding mothers who are HIV positive.

The judgment will be instrumental in shaping the future discourse on issues pertaining to the privacy and confidentiality of data of persons living with HIV. This landmark judgment if successful, will affect the future privacy and confidentiality guidelines. Relatedly, the judgment is expected to provide proper guidance on presidential powers in relation to issuing of directives, more so where such directives are likely to lead to infringement of constitutional rights.

In this Petition, KELIN and the other petitioners have asked the court for the following:

1. The court to declare that the particular presidential directive breaches constitutional rights of petitioners;
2. The court to grant an order compelling the respondents to destroy all data in their possession, collected as a result of the directive, linking names of persons living with HIV and their HIV status, within a period of 14 days. In the alternative, the court has been asked to direct them to codify the names collected as a result of the directive, and ensure that they are stored in a manner that does not link their names and their HIV status in a public document.
3. The court to grant an order compelling the 1^st respondent to put in place within 90 days of the court’s judgment the privacy guidelines, in form of regulations as required by Section 20 of the HIV & AIDS Prevention and Control Act, on the collection and store rage of data relating to HIV incorporating the following;

The session is open to the public and all are invited to the High Court of Kenya at Nairobi, Court No. 1 on 3^rd Floor, Milimani Law Courts at 1400 hrs.

To contribute to the discussions on this forum follow KELIN on our social media platforms: Twitter: @KELINkenya using hashtag #UhuruHIVlist

Facebook: http://www.facebook.com/kelinkenya

For background on the case:  https://www.kelinkenya.org/2015/06/announcement-2/

For more information contact:
Sandra Ochola,

Deputy Executive Director (KELIN)

Kenya Legal and Ethical Issues Network on HIV & AIDS (KELIN)
4^th Floor, Somak Building, Mombasa Road
PO Box 112-00200, KNH
Email: sochola@kelinkenya.org
Mobile No: +254 790339964